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Do not Give Up Facing Lupus

Written By Luthfie fadhillah on Rabu, 16 Maret 2011 | 02.07

As a result of lupus, the bitterness of life experienced by Betty Dwi Agustina Rahayu (38). However, the disease called systemic lupus erythematosus complete this also makes Betty bolder move on with her life.

Symptoms such as spots on the skin, mouth sores do not heal, and often ill Betty has experienced since 2003. Then, the body becomes swollen and hair loss. When containing up to birth her fourth child, Betty's condition declined rapidly. Doctors in Probolinggo, where Betty lives with her husband at the time, suspecting that these women suffer from lupus ANA test (anti-nuclear antibody) and anti-DNA test.

Knowing he was suffering from lupus, the world seemed to collapse. Betty felt the disease is no cure. Especially when it contains a fifth child she and her husband left her. "After the divorce, my parents back home in Karah, Surabaya, and re-arrange the living. Son of my many, who care if I die," he said.

Betty got up and was treated until his condition stabilized. However, when fatigue or stress, lupus can attack again.

Two things, stress and fatigue, according to Chairman of the Lupus Foundation of Indonesia (YLI), East Java Karin Grace (47), it should be avoided people with lupus disease (Odapus). Because, when the condition of the body decreases, there is excess production of antibodies. The advantages of these antibodies attack the other organs of the weak. This disease called lupus.

"The cause is unknown, but the disease is not contagious and may not be lowered," said Karin who began experiencing symptoms of lupus in 2001 and managed to break away from drugs in 2007. Rosati Safitri Herma (33) also managed to overcome lupus. Symptoms are initially tingling in hands and legs, and dizziness and fever initially suspected neurological disease. Employees of the World Trade Center Surabaya requires about seven years to discover that with lupus disease.

Information

After learning suffered from lupus, Rosati was hit. This happens due to illness due to assume her relatives witchcraft. Ignorance is difficult.

As well as Arianty Cempaka (19) derived from Samarinda. When experiencing severe rash on the body and hands, Cempaka rejected at the airport in Samarinda when it will be treated to Surabaya. Previously, doctors diagnose typhoid Cempaka affected, then sentenced lymph cancer (lymphoma), and asked him to undergo surgery.

Found himself positive lupus, Cempaka looking for information about a disease called thousand-faced because it resembles other diseases. Healing is achieved. Burns on his skin was obscure. Now Cempaka will continue his studies at IKIP PGRI Jember.

To provide information about lupus, Karin, Rosati, Betty, Cempaka, and other former lupus patients, Sunday (9 / 5), distributed a pocket book about this autoimmune disease. Moreover, 10 May is World Lupus Day.

"This disease can cause death if left unchecked. But, actually we could recover. So, the cook has to lose and give up if it has been diagnosed with lupus. This awareness that we share," said Karin who each day still commute to Krian Surabaya, where it works.
02.07 | 0 komentar | Read More

Important, since diagnosis of lupus Baby

Lupus diagnosis in infants is important  done early  to prevent the possibility of  worse effects and adverse reactions.

Lupus is a systemic disease that affects one or several organs, characterized by extensive inflammation is intermittent. The majority of people with lupus are women. This is expected because of lupus also coined the hormone estrogen which usually develops in women of childbearing age.

Dian said, the diagnosis of lupus in children became one of the ways that parents can do to prevent the possibility of a worse. "In lupus patients with kidney disorders frequently encountered child and cardiac abnormalities. About 30 percent of lupus patients have abnormal cardiac kids," he said.

Doctors from the Child Health Section Hasan Sadikin Hospital, Budi Setiabudiawan, say, the diagnosis of lupus in infants do not have the same age adults, using at least 4 of the 11 criteria of the American Rheumatology Association (ARA). Diagnosis in infants done when a newborn baby into yellow or blood disorders are identified.

Some diagnoses according to the ARA is the appearance of a round rash and persistent, sensitive to stimuli, sores in the mouth and the back of the nose, kidney disorders with the discovery of protein in urine, and blood disorders. In addition, a decline in white blood cell count to less than 4,000 per cubic millimeter or a decrease in the number of blood platelets to less than 100,000 per cubic millimeter.
02.05 | 0 komentar | Read More

Silicon Injection Prohibited Lupus

Some efforts can be made of people with lupus disease (Odapus) to maintain the quality of health himself, among others:

* Be careful in the sun
Many Odapus trouble with ultraviolet rays from the sun. Use a sunscreen containing SPF and use clothes that are closed if you want to travel, especially when out of the house at 09:00 to 16:00.

* Eat healthy and balanced
Although there are no restrictions or special diet for Odapus, should limit the intake of foods high in fat, sugar, and salt.

* Regular exercise
Your sports lovers, but affected by lupus? Do not worry, you can still do sports. Select a sport which is not too heavy so as not to make you too tired. Walking, stretching, swimming, light aerobics, and cycling can still be done with the records must be interspersed with rest. For greater certainty, should consult with your physician to find out a suitable exercise. Lupu properties differ between patients with each other.

* Stop smoking
Cigarettes contain over 4,000 chemicals that are harmful to the body. Many of them that can trigger cutaneous lupus.

* Avoid the use of silicon
Odapus should not perform silicone injections for cosmetic reasons. If you still insist on using silicone, first consult with a physician expert.

* Intelligent rest
Complaints fatigue often seen in Odapus. For that Odapus must often take a rest when on the move. To remember, rest or sleep for too long can also create a weak body. Therefore clever set-pandailah breaks between activities.
02.03 | 0 komentar | Read More

FDA Approved Drugs New Lupus

has issued a permit for marketing Benlysta, drugs to cope with the disease lupus.

Latest Drug lupus disease in the next 50 years was assessed by the medical community to pave the way for the development of other drugs that more effectively treat diseases such immune system disorders.

Benlysta is the type of injectable drug designed to relieve flare-ups and pain caused by lupus, a disease that attacks the immune system and potentially fatal condition in which immunity can invade tissues and organs.

Human Genome Sciences Inc. The company took about 15 years to develop Benlysta. The plan, these drugs will be made and marketed with GlaxoSmithKline PLC.

The company also estimates that at least 200,000 people with lupus in the U.S. will benefit from this drug. However, experts stressed that Benlysta is not a miracle drug that will give.

This new drug tested against 35 per cent of patients in North America and will not be effective for patients who are already in very bad condition. In addition, this drug also did not show positive results in patients were black or African American, more precisely with this disease.

The FDA said in its official statement that this drug manufacturers must conduct advanced research exclusively to black patients.

Dr. Betty Diamond, who has been researching lupus for 30 years, assess the presence Benlysta will give researchers and developers passion for medicine.

"This will give the message that the conduct of successful clinical trials in lupus patients is possible and very important for the pharmaceutical industry to remain interested in this disease," said Diamond of the Feinstein Institute in New York.
02.01 | 0 komentar | Read More

Many People With Lupus Experiencing Discrimination

Many people with lupus experience discriminatory treatment. In fact, lupus can be controlled and physically capable of doing productive work.

It was told by Diane Syarief Pratomo, Monday (14 / 3). Founder Duha Shams Foundation, a foundation for persons with lupus, based in Bandung, is concerned with so many people with lupus is difficult to get a job.

When people with lupus applying for jobs, so Diane, they were able to pass a written test and interview stages. This suggests that the ability, of persons with lupus can be equated with other applicants.

"But as soon undergo medical tests, people with lupus who had otherwise failed to apply for a job," said Diane.

Those who had worked at the company could be threatened fired if caught exposed to lupus. The reason is, when people with lupus need to rest a few days when conditions are weak, he considered unproductive.

Dian told me, there is one member who was forced to hide information that he suffered from lupus for refusing to take advantage of his condition was deemed not come to work.

Autoimmune

Lupus is an immune disorder in which antibodies that should protect the body from foreign substances, like bacteria, it attacks the body's own organs. Until now the exact cause is unknown disorder.

When the antibodies attack the body and is not handled properly, will cause complications. These complications can cause death because they can occur in vital organs, such as heart, kidney, brain and lungs.

One characteristic of people with lupus are easily tired and sometimes have severe fatigue. In conditions of severe fatigue is disabled lupus often can only be lying weakly in bed. If forced to work, lupus disorders will experience complications.
02.00 | 0 komentar | Read More
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